Russia and the whole world on 22 September for the first time celebrated the international Day of support for patients with chronic myeloid leukemia.
Date 22.09 have chosen not casually, as chronic myeloid leukemia is the first malignant disease with a particular genetic anomaly, which is determined by changing the location of parts of the 22-th and 9-th chromosome.
Chronic myeloid leukemia is a rare cancer disease, the incidence is approximately one to two cases per 100 000 people. In Russia, according to the national register registered about 6 000 patients with this pathology, including 100 children and adolescents. Until recently, the diagnosis of CML meant a death sentence. However, today the situation has changed.
In the framework of the Russian Federal program "7 nosologies" patients with chronic myeloid leukemia in a timely manner are provided with the necessary preparations. Despite this, up to 30% of patients have resistance or intolerance to Protocol therapy type. Russian community of patients with chronic myeloid leukemia have repeatedly appealed to the Ministry with a proposal to expand the list of drugs for therapy in the framework of the "7 nosologies". Since the issue of update, the "7 nosologies" still remains without consideration of the Russian community of patients decided to send the President of the Russian Federation the petition, to entrust the Government of the Russian Federation to revise and Supplement the list of drugs included in the program "7 nosologies" and, thereby, to allow Russian citizens to obtain the necessary medical assistance.
"We hope that in the future each patient will be provided with drugs and qualified supervision throughout Russia. Expanding the list of drugs for the treatment of CML and ensuring their widespread availability seems to us the next problem to be solved with the support of the state," said Lily Matveeva, Director of ANO "Assistance".
Sign the Petition on the site http://www.sodeystvie-cml.ru/ from 22 September to 6 October 2011.